Posts Tagged ‘Care Givers’

19
Apr

A locked iron door

   Posted by: aman    in Sepia Leaves

This Saturday I went to meet members of Roshni, the ACMI initiative. It was a mixed group of victims and care givers. As we started the session I realized that the notes I had made were not going to be very helpful.

These were real people and there was nothing new that I could have told them. A tragedy has befallen their lives and they come here to share their experiences. We must draw on those experiences, process them, strip them of presumptions, and make nuggets of knowledge that maybe other care givers can use. We did that by starting a conversation. For example,

1. When users feel the medication is not working we have to take into account that the pharmaceutical psychiatry industry is growing the fastest in the world today but they still do not have effective ways to find new drugs. There is no easy co-relation between chemicals and effectiveness because the results are not tied to figures. All they have are some subjective type tests and the users’ word, which also depends upon the mood of those who are trying the trial drugs.
2. Regular medication also has very hard side-effects. Most often we get angry with a victim for being lazy, but it might be that the medication that he or she is consuming is causing the blood sugar to rise and it is not as someone was saying ‘opium is mixed in drugs’.
3. The discipline of psychiatry has still not evolved enough for the practitioners to be able to make effective and absolute diagnoses. To reach a consensus that the same condition is called the same name by different people in different contexts. That is why it is important that the care givers make the effort to participate in the process of diagnoses and care.
4. Genetics plays an important role in transmitting the illnesses between generations in a family but it can again not be tied to exact percentages. Neither can we rule out the environment or individual behaviour patterns. Genes also work on the basis of whether they are active or dormant or repressive and so on.

We ended up with the question what is it that exactly happens in the mind of a victim. We had with us a lady who has successfully combated her schizophrenia. She said, ‘A strong iron door is locked on the mind. Whatever happens, washes over the person whose mind is locked. We do not have the right keys to open the locks. While the world grows around us, we live in the closed room.’

A very important point to consider, and this was the first time I heard it from a user. Thank you lady.

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13
Apr

Mental Illness and Guilt

   Posted by: aman    in Sepia Leaves

Over the last two months those of you who do come to this site must have been sorely disappointed in me. I have been so non-punctual about updating these pages. I was caught up with something else, my second book, which I will talk about later.

For now this is a notification on a talk I am giving at Roshni, a part of ACMI (Action for Mental Illness) initiative this Saturday, April 18, 11 AM at Ram Manohar Lohia Hospital, New Delhi. Link to ACMI.

I am no expert on human behaviour or on mental illness. All that has happened to me has been 35 years of living in close proximity to mental illness. Okay not so close, I was mostly away from my fragmented home where my mother was ill. But my mother was also in my heart. That way she was never too far. I grew up watching for her, her moods, her tempers, and my behaviour.

I also saw my father all these years, crumbling under the onslaught of mother’s temper. He felt guilty. I felt guilty for being their son and keeping them married. Under the combined load of all our guilt my father lost his mind towards his end (2003). I had been writing Sepia Leaves for about two years before that but the night my father passed away the format of the book revealed itself to me. I wrote Sepia Leaves to tell Papa that he was not responsible.

Roshni is an association of care givers of mentally ill patients. I want to stand in front of these care givers and listen to them telling me their stories. And I want to present to them the fact that they are not responsible for what has happened in their lives. In fact, they have already done much more than is their due. Come!

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